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Patient and Public Involvement in Clinical Research : Implementation and Practice

Bivens, Kristin Marie Guyon, Amelie J.A.A. Schwappach, David Segelov, Eva

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Forventes utgitt

Forventes utgitt: 31.03.2027

Leveringstid: 14-30 virkedager

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Involving patients and the public is an area of increasing importance in the field of clinical, patient-centred research for achieving better informed, patient-engaged clinical care. This text provides meaningful definitions and overviews of the current state of patient and public involvement (PPI) globally. Ranging from theory to practice, it disentangles and defines PPI aspects and outcomes when holistically applied before, during, and after clinical research activities commence. Written for medical students, clinicians, and members of clinical research teams, this text amplifies promoting strong partnerships between clinicians, researchers, and PPI contributors in clinical research. Key Features:Discusses what defines the role of a PPI contributorDemarcates the boundaries between PPI contributors with lived experience and professional patient expertsAddresses challenges of implementing PPI in various domains of clinical research, including some not previously discussed, such as PPI in BiobanksPresents concrete examples of successful and unsuccessful PPI and articulates specific limitations of PPIIncludes PPI guidance for special populations, such as adolescents

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